HOPE LOVES COMPANY
Hope Loves Company is the only nonprofit in the United States with the unique mission to provide emotional and educational support to children and young adults who have had or have a loved one battling ALS (Amyotrophic Lateral Sclerosis) or Lou Gehrig's disease.
An overnight weekend retreat where campers enjoy recreational activities such as swimming, hiking, canoeing, archery, arts and crafts, and more, while receiving support from peers and families who share in their experiences.
Camp HLC is a wonderful opportunity for children, young adults, and families affected by ALS to come together to have fun, build friendships, and feel less alone in their challenges.
Camp HLC takes place in six states: New Jersey, Indiana, Massachusetts, Illinois, Florida, and California!
Hugs of Hope Care Packages
There are many families affected by ALS and many of those families have children. In addition to our camps, we can provide a Hug of Hope from afar. A Hug of Hope is a care package that includes an age appropriate gift (stuffed animal, drawstring backpack, or gift card), HLC t-shirt, card, snack, HLC wristband, literature, and a Camp HLC brochure.
Young Ambassador and Scholarship Program
Teenagers and young adults ages 15-21 who have attended at least one Camp HLC weekend can apply to become HLC Young Ambassadors. Young Ambassadors will attend meetings, spread awareness about ALS and Hope Loves Company's mission, and build and develop business, writing, public speaking, and marketing skills.
Each year, Hope Loves Company awards one Young Ambassador the Susan B. Anderson Scholarship. This scholarship is awarded to Young Ambassadors attending an accredited 2- or 4-year university who have followed in Susan's example of courage during their ALS journey.
Family Fun Days
Family Fun Days are local events where families affected by ALS can come together to have fun and make new friends!
Previous Family Fun Days have taken place at the CoCo Key Water Resort, where families enjoyed swimming, music, and food; Shady Brook Farms, where we had face painting, pumpkin picking, and a hay ride; and our next Family Fun Day will take place in Fall 2020!
Educational Materials and Resources
We send free educational materials and children's books to families affected by ALS, including:
What Did You Learn Today? written by Tina Singer-Ames
Tina Singer-Ames wrote What Did You Learn Today? for her children, Nora and Adam. The book follows Mrs. Mayer, an elementary school teacher living with ALS, and her students.
The Stars That Shine written by Jodi O'Donnell-Ames
The Stars That Shine is a lovely tribute to all children who live with a disabled or terminally ill parent. Enclosed are resources for ALS patients, their caregivers and children. Although this story is about ALS, the message resonates with all families who live with similar challenges.
Someone I Love Has ALS: A Caregiver Guide edited by Jodi O'Donnell-Ames
"This guide was created by a variety of caregivers and professionals who have years of experience with various aspects of ALS. It was written by volunteers and experts who care about ALS and your journey. It is the resource that I wish we had received along with the shocking diagnosis." - Jodi O'Donnell-Ames.
Please contact Jodi O'Donnell-Ames at firstname.lastname@example.org if you're interested in receiving any of our children's books and educational materials. We also include WDYLT?, TSTS, and SILHALS in our Hug of Hope care packages.